Are you or someone you love living with dementia at home?
Do you care for people living with dementia as a formal careworker?
If you answered yes to any of these questions, we invite you to join our study!
This is a study that involves sit-down interviews, going on a walk in your neighbourhood, and creating a map of your neighbourhood. You will receive monetary compensation for your time.
We are looking for three types of participants for this study, who form a ‘triad’: (Note: you do not need to be a part of the triad to participate in the study.)
People living with dementia who:
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- Self-identify as an immigrant to Canada
- Live at home
- Live in Scarborough
Caregivers of people living with dementia (e.g. spouse, family member) who:
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- live with the person they care for, and
- live in Scarborough.
Care workers (e.g. PSW) who:
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- have completed all schooling and training related to their care work.
By participating in the study, we will ask you to share your stories in three different ways:
Interviews
We will be taking the time to get to know you over the course of two interviews on Zoom, phone or in person at the beginning and at the end.
Go-along Interview
We will ask you to take us on a tour of your neighbourhood and visit places that are a part of your everyday life.
Mapping Exercise
- We will provide you with a map of your neighbourhood, and ask you where you typically go in your neighbourhood. We will also ask you about your social connections in the neighbourhood.
Additionally you can participate in these optional methods:
Taking photos
We will be giving you a digital camera to take photos of the places in your neighbourhood that are part of your everyday life.
Travel Diary
We will provide you with a travel diary and GPS tracker to carry for 2 weeks. This information will be stored securely to protect your privacy.
This is to get a better understanding of where you normally travel in your neighbourhood.
*You do not have to worry about knowing how to use the equipment! We will be teaching you how to use the equipment.
All of your data will be stored securely and confidentially.
Participation in this study will take approximately 5 hours, over a few visits, depending on your preferences. If you select the alternative methods (photos and the travel diary), it will add more time. You will receive compensation for your time.
Are you interested in finding out more about the study? Email us at cs.dementia@gmail.com or call Dr. Biglieri at 416-979-5000 x 544770.
This study is supported by an Insight Development Grant from the Social Sciences and Humanities Research Council of Canada. The study has been reviewed and received ethics clearance through Ryerson’s Ethics Board (2022-135). If you have any questions or concerns, please contact the Ryerson Research Ethics Board at 416-979-5042 or rebchair@ryerson.ca.